Are you sure you have HPPD? How long did it take for your visual and other problems to start after taking the HALUCINOGEN?

[TomHope]

Hi Hppd community, pls advise..

How long did it take for most of you to experience problems after taking a hallucinogen?

 

From 2014 to 2019 I had ECSTASY ten times, always with alcohol. Always great fun, no bad trip.

6 months after the last ECSTASY: floaters started appearing, just a little. Over time, however, they increased. Until after 2 years with floaters did Palinopsia come, slowly, but more and more..in another year Purkinje tree, Bfep and other symptoms were added.

Today is 5 years since my last Ecstasy, I don't do drugs, I don't drink alcohol, I live a healthy life (only heated tobacco) but the visuals are still SLOWLY WORSE AND WORSE !!!

 

I only have visual symptoms and mild tinnitus. Depression just because of the visuals. I never had DP/DR or color flashbacks.

But I am a hypersensitive person with a tendency to melancholia - a candidate for HPPD

 

My visual problems: Floaters, Palinopsia/Afterimage/Ghosting, BFEP, Tinnitus, Oscillopsia, Purkinje tree, Visual snow but only a little, at night.

 

All medical tests are fine. I have tried a healthy lifestyle, various antidepressants, antipsychotics, Keppra, Lamo, Clono, herbs, supplements, vitamins, exercise, hyperbaric chamber, bioneurofeedback, psychotherapy, meditation, but nothink...

 

I am still looking for the cause of my visual problems so I can direct my treatment well. At least I have to stop it!!

 

Possible cause:

-ordinary VSS? ..But my VS is minimal

 

-Borrelia? ..But tests are negative

 

-Cervical instability of the cervical spine? ..Maby, but my neck isn't that bad

 

-Hppd? ..A slow onset of symptoms that lasted for several years without colors and changes in mood and perception of the world

IF I HAVE HPPD, I THINK THAT ONSET AND INCREASE OF SYMPTOMS IS VERY UNSTANDARD

My doctor thinks it's something between VSS and HPPD..

 

 

What do you think about this please? Are you sure about your HPPD?

 

 

Thank you very much for your opinion

Stay strong, keep fighting, don't lose hope!!

I support the VSS Initiative because I believe that one day we will come out of this hell hand in hand with "NO DRUG" VSS patients. I hope..

 

TOM

[brake]

I knew during my LSD trip that something was off and I felt it in my brain. The next day when I woke up I feel like I wasn't over it, it was strange. Then the following day it was triggered by a bunch of coffee and not enough sleep. It was like a permanent very intense constant flashback. So yeah it was right away. Definitely felt like if I never tried a psychedelic, wouldn't have had happened. It was terrifying too and a lot of people thought it was impossible. And the visuals were exactly like the visuals I experienced during the LSD trip.

Edited October 17, 2024 by brake

[Olliehxll]

For me, the trip just didn’t end. I woke up in the morning seeing a milder version of what I saw when I took the acid then it just never ended. 5 years later and I’m still living with it. Even though I’m type 2 I still get ‘flashbacks’ where my HPPD symptoms suddenly become full on tripping for a few minutes-a few days so I would look out for that. I’m no practitioner so I can’t say for sure what you have but it sure sounds complicated. I’ve never heard of type 2 (what you’re describing) presenting a while after the trip. The onset is always immediately after the trip (as far as I’m aware). At the end of the day, it is a disgustingly overlooked and under-studied condition so who knows. I hope this helped and I wish you the best!

Edited October 18, 2024 by Olliehxll

[brake]

3 hours ago, Olliehxll said:

For me, the trip just didn’t end. I woke up in the morning seeing a milder version of what I saw when I took the acid then it just never ended. 5 years later and I’m still living with it. Even though I’m type 2 I still get ‘flashbacks’ where my HPPD symptoms suddenly become full on tripping for a few minutes-a few days so I would look out for that. I’m no practitioner so I can’t say for sure what you have but it sure sounds complicated. I’ve never heard of type 2 (what you’re describing) presenting a while after the trip. The onset is always immediately after the trip (as far as I’m aware). At the end of the day, it is a disgustingly overlooked and under-studied condition so who knows. I hope this helped and I wish you the best!

Exactly I hope HPPD and Visual Snow Syndrome is on a list like this one day.

[yarkadin]

TomHope, did you take any other hallucinogen at all in your life?  Or are you saying Ecstasy and alcohol are the only recreational drugs you've taken?  And you haven't taken anything at all since your last ecstasy experience?  Clean sober for 2 years?

Your experience reflects in a way what I went through... except there was no 2 year lag.  In my case, palinopsia, after images and the other crap started occurring about 1-2 months in after my bad trip.  I've heard the same from several others over the years. 

Edited October 18, 2024 by yarkadin

[Spartan]

Thanks for sharing.. for me immediate onset I.e. the next morning.. said to my friend after waking up, wow I can still see stt the same visuals. Been there ever since this much worse now. 

I have herd somewhere that people maybe more susceptible when mixing different compounds i.e. psychedelics, pharmaceuticals, alcohol etc 

Hope you start finding  answers and getting healing and recovery! 

 

[Spartan]

On 10/17/2024 at 7:58 PM, TomHope said:

Hi Hppd community, pls advise..

How long did it take for most of you to experience problems after taking a hallucinogen?

 

From 2014 to 2019 I had ECSTASY ten times, always with alcohol. Always great fun, no bad trip.

6 months after the last ECSTASY: floaters started appearing, just a little. Over time, however, they increased. Until after 2 years with floaters did Palinopsia come, slowly, but more and more..in another year Purkinje tree, Bfep and other symptoms were added.

Today is 5 years since my last Ecstasy, I don't do drugs, I don't drink alcohol, I live a healthy life (only heated tobacco) but the visuals are still SLOWLY WORSE AND WORSE !!!

 

I only have visual symptoms and mild tinnitus. Depression just because of the visuals. I never had DP/DR or color flashbacks.

But I am a hypersensitive person with a tendency to melancholia - a candidate for HPPD

 

My visual problems: Floaters, Palinopsia/Afterimage/Ghosting, BFEP, Tinnitus, Oscillopsia, Purkinje tree, Visual snow but only a little, at night.

 

All medical tests are fine. I have tried a healthy lifestyle, various antidepressants, antipsychotics, Keppra, Lamo, Clono, herbs, supplements, vitamins, exercise, hyperbaric chamber, bioneurofeedback, psychotherapy, meditation, but nothink...

 

I am still looking for the cause of my visual problems so I can direct my treatment well. At least I have to stop it!!

 

Possible cause:

-ordinary VSS? ..But my VS is minimal

 

-Borrelia? ..But tests are negative

 

-Cervical instability of the cervical spine? ..Maby, but my neck isn't that bad

 

-Hppd? ..A slow onset of symptoms that lasted for several years without colors and changes in mood and perception of the world

IF I HAVE HPPD, I THINK THAT ONSET AND INCREASE OF SYMPTOMS IS VERY UNSTANDARD

My doctor thinks it's something between VSS and HPPD..

 

 

What do you think about this please? Are you sure about your HPPD?

 

 

Thank you very much for your opinion

Stay strong, keep fighting, don't lose hope!!

I support the VSS Initiative because I believe that one day we will come out of this hell hand in hand with "NO DRUG" VSS patients. I hope..

 

TOM

 

Hey Tom 

Thanks for sharing..

for me was immediate onset I.e. the next morning.. said to my friend after waking up, "wow I can still see stt the same visuals". Been there ever since tho much worse now. 

I have herd somewhere that people maybe more susceptible when mixing different compounds i.e. psychedelics, pharmaceuticals, alcohol etc 

Hope you start finding all your answers and working your way towards healing and recovery! 

 

[TomHope]

On 18. 10. 2024 at 20:34, yarkadin said:

TomHope, bral jsi v životě ještě nějaký jiný halucinogen? Nebo říkáte, že extáze a alkohol jsou jediné rekreační drogy, které jste užil? A od posledního zážitku s extází jsi nebral vůbec nic? Čistý střízlivý na 2 roky?

Vaše zkušenost svým způsobem odráží to, čím jsem si prošel... až na to, že nedošlo k žádné 2leté prodlevě. V mém případě se palinopsie, po obrázcích a další svinstvo začaly objevovat asi 1-2 měsíce po mém špatném výletu. To samé jsem za ta léta slyšel od několika dalších. 

No, I did not take any other hallucinogen.
2019 last Ecstasy (never any other drugs), 2020 starting floaters, 2022 starting Palinopsia and other symptoms.
I mean, 2022 little cocaine, but no abnormal deterioration after that..

[yarkadin]

On 10/24/2024 at 5:30 AM, TomHope said:

No, I did not take any other hallucinogen.
2019 last Ecstasy (never any other drugs), 2020 starting floaters, 2022 starting Palinopsia and other symptoms.
I mean, 2022 little cocaine, but no abnormal deterioration after that..

There must be some relationship between ecstasy, LSD and other drugs that is leading to this reaction in the brain.  We need some Einstein of neuroscience to figure it out... I am a software developer for over 25 years, solving problems is what I have been doing almost each day I work; I know there must be some mechanism for all of this.  My thinking is that once the mechanism is better or fully understood, only then will we get truly close to a solution.

[TomHope]

On 19. 10. 2024 at 9:30, Spartan said:

 

Ahoj Tome 

Děkujeme za sdílení..

pro mě byl okamžitý nástup, tj. druhý den ráno.. řekl mému příteli po probuzení, "wow, stále vidím stejné obrazy". Od té doby je to tam mnohem horší. 

Někde mám stádo, že lidé jsou možná náchylnější při míchání různých sloučenin, např. psychedelika, léčiva, alkohol atd. 

Doufám, že začnete nacházet všechny své odpovědi a propracujete se k uzdravení a zotavení ! 

 

Thanx

[TomHope]

On 26. 10. 2024 at 16:34, yarkadin said:

Mezi extází, LSD a jinými drogami musí existovat nějaký vztah, který vede k této reakci v mozku. Potřebujeme nějakého Einsteina z neurovědy, abychom na to přišli... Jsem vývojář softwaru přes 25 let a řešení problémů je to, co dělám téměř každý den v práci; Vím, že na to všechno musí být nějaký mechanismus. Myslím si, že jakmile bude mechanismus lépe nebo plně pochopen, teprve potom se skutečně přiblížíme řešení.

I hope

[Spartan]

29 minutes ago, TomHope said:

 

Thankyou 

Though WTF this is not me. I don't speak that language. 

Has my username or account been hacked ? 

Moderator or @Jay1 can you please take a look 

Thankyou

[Spartan]

33 minutes ago, TomHope said:

Thanx

Maybe it's a translation thing ? 

[yarkadin]

It's time you learned Czech, Spartan

[TomHope]

On 7. 11. 2024 at 11:19, Spartan said:

Možná jde o překlad? 

Sry bro yes, it was a translation, I'm Czech